Patient support

Living with a condition is not only a medical problem, and the people who understand it best are often the ones already living with it. These are national organisations offering information, helplines and peer support. None of them is sofidex, and none of them paid to be listed here.

46 organisations across 24 areas · links checked 2026-08-02

Allergy

Asthma and Allergy Foundation of AmericaAsthma and allergy education, an online community, and local support groups.aafa.orgFood Allergy Research & EducationLiving with food allergy: label reading, school plans, and anaphylaxis training.foodallergy.org

Arthritis

Arthritis FoundationHelpline, exercise programmes, and local groups for every kind of arthritis.arthritis.orgLupus Foundation of AmericaLupus education, a national helpline, and chapter support groups.lupus.org

Blood

National Bleeding Disorders FoundationHaemophilia and other bleeding disorders: treatment centres, insurance help, camps.bleeding.orgSickle Cell Disease Association of AmericaSickle cell education, member organisations, and help finding specialist care.sicklecelldisease.org

Bone

Bone Health & Osteoporosis FoundationBone density, fracture prevention, and support after a fracture.bonehealthandosteoporosis.org

Cancer

American Cancer Society24-hour helpline, free rides to treatment, lodging, and peer support.cancer.orgCancerCareFree counselling, support groups and financial assistance from oncology social workers.cancercare.orgLeukemia & Lymphoma SocietyBlood cancer information, financial aid, and one-to-one peer support.lls.orgNational Cancer InstituteThe US government's cancer information service, including clinical trial search.cancer.govSusan G. KomenBreast cancer helpline, treatment navigation, and financial assistance.komen.org

Caregiving

Caregiver Action NetworkPractical help for family caregivers: a helpline, forums, and how-to guides.caregiveraction.orgFamily Caregiver AllianceCaregiver support, respite care information, and a state-by-state services locator.caregiver.org

Diabetes

American Diabetes AssociationDiabetes education, food and nutrition guidance, and advocacy on insulin costs.diabetes.orgBreakthrough T1D (formerly JDRF)Type 1 diabetes: newly-diagnosed packs, peer mentoring, and research news.breakthrought1d.org

Digestive

Celiac Disease FoundationGluten-free living, a symptom checklist, and finding a specialist.celiac.orgCrohn's & Colitis FoundationIBD education, a helpline, local chapters, and a clinical trial finder.crohnscolitisfoundation.org

Eye

Prevent BlindnessEye health information, vision screening, and help paying for eye care.preventblindness.org

General

MedlinePlus (NLM)The US National Library of Medicine's plain-language health encyclopaedia.medlineplus.govNIH Health InformationResearch-based health information from the National Institutes of Health.nih.gov

Hearing

Hearing Loss Association of AmericaHearing loss support, chapters, and guidance on hearing aids and access.hearingloss.org

Heart

American Heart AssociationHeart disease and stroke information, warning signs, and a patient support network.heart.orgMMended HeartsPeer visitors who have had heart surgery themselves, in hospitals and online.mendedhearts.org

Infectious disease

CDCUS public health guidance on infections, vaccines, travel and outbreaks.cdc.gov

Kidney

National Kidney FoundationKidney disease stages, dialysis and transplant information, and a helpline.kidney.org

Liver

American Liver FoundationLiver disease education, a helpline, and support groups.liverfoundation.org

Lung

American Lung AssociationLung health helpline, quit-smoking programmes, and better-breathers clubs.lung.orgCOPD FoundationCOPD information, a patient-powered research network, and a helpline.copdfoundation.orgCystic Fibrosis FoundationCF care centre finder, treatment information, and family support.cff.org

Mental health

Anxiety & Depression Association of AmericaAnxiety and depression resources, a therapist directory, and peer communities.adaa.orgNational Alliance on Mental IllnessHelpline, family education courses, and local affiliates across the country.nami.org

Neurology

ALS AssociationALS care services, equipment loans, and local chapter support.als.orgAlzheimer's Association24-hour helpline, care navigation, and support for families and carers.alz.orgAmerican Migraine FoundationMigraine information, a doctor finder, and a patient support community.americanmigrainefoundation.orgEpilepsy FoundationSeizure first aid, a 24-hour helpline, and local epilepsy support.epilepsy.comNNational Multiple Sclerosis SocietyMS navigators, financial assistance, and local programmes.nationalmssociety.orgPParkinson's FoundationParkinson's helpline, exercise programmes, and Centers of Excellence.parkinson.org

Pregnancy

March of DimesPregnancy and newborn health, prematurity, and NICU family support.marchofdimes.org

Rare disease

Genetic and Rare Diseases Information CenterNIH information specialists who answer questions about rare conditions.rarediseases.info.nih.govNational Organization for Rare DisordersRare disease database, patient assistance programmes, and advocacy.rarediseases.org

Skin

National Eczema AssociationEczema treatment information, a product directory, and a patient community.nationaleczema.orgNational Psoriasis FoundationPsoriasis and psoriatic arthritis information, and a patient navigation service.psoriasis.org

Stroke

American Stroke AssociationStroke warning signs, recovery guidance, and a survivor and carer network.stroke.org

Thyroid

American Thyroid AssociationThyroid conditions explained, and help finding a thyroid specialist.thyroid.org

Urology

Urology Care FoundationUrology conditions in plain language, from the American Urological Association.urologyhealth.org

Every link was checked on 2026-08-02. sofidex has no relationship with these organisations and does not vet the advice they give — they are listed because each is a recognised national body in its area. If a link is broken, or an organisation should be here and is not, tell us.