Wolf hirschhorn syndrome: when to get help

1. 1

   Is any of this happening now?

   Call 911

   Seek emergency help for:

   • A first known seizure
   • A seizure lasting five minutes or longer, unless the action plan says otherwise
   • Repeated seizures without recovery between them
   • Blue or grey lips, severe breathing difficulty, or choking that does not clear
   • Unresponsiveness or an injury during a seizure
   • A serious allergic reaction or other rapidly worsening illness
   Other emergency signs, for anyone

   • Someone who is struggling to breathe, gasping, choking, or cannot get words out
   • Someone who has chest pain, tightness or pressure lasting more than a few minutes
   • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
   • Someone who is unconscious, or cannot be woken
   • Someone who is bleeding heavily and it will not stop with firm pressure
   • Someone who has had a seizure that will not stop, or does not wake up afterwards
   • Someone who has lips or skin that look pale, blue, grey or blotchy
   • Someone who you believe has taken an overdose or swallowed something poisonous
   Yes, one of theseNo, none of these
2. 2

   Is any of this happening?

   Be seen today

   Prompt assessment is also appropriate for repeated coughing or choking during meals, unusual sleepiness after feeds, frequent chest infections, or signs of dehydration such as much less urine than usual.

   Yes, one of theseNo, none of these
3. 3

   Does any of this apply?

   Book an appointment

   Arrange routine medical review for new or worsening feeding problems, poor weight gain, increased reflux, constipation, changes in hearing or vision, loss of a previously learned skill, or a change in seizure pattern.

   Yes, one of theseNo, none of these

Every sign above is quoted from the sofidex article on Wolf hirschhorn syndrome. If you are not sure, err upward — it is always reasonable to be checked.