Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Call emergency services or go to an emergency department for:
New severe confusion, extreme sleepiness, collapse, or inability to wake normally
Vomiting blood, passing black tar-like stool, or heavy unexplained bleeding
Rapidly worsening jaundice with abdominal swelling or confusion
Sudden severe difficulty swallowing or breathing
Thoughts of suicide with an immediate risk of acting on them
These symptoms can occur with liver failure, internal bleeding, aspiration, or a mental health emergency.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Contact your medical team promptly for new jaundice, dark urine, increasing abdominal or leg swelling, worsening tremor, new balance problems, or changes in speech or swallowing.
Also seek prompt advice for a severe rash, fever, mouth sores, unusual bruising, or marked weakness after starting or changing medicine.
3
Does any of this apply?
Book an appointment
If medicine has been missed, cannot be kept down, or is difficult to take as directed, contact the prescribing team rather than waiting for the next routine visit.
Routine follow-up includes planned blood and urine tests, medicine reviews, and monitoring of liver or neurological symptoms.
A new Wilson disease diagnosis in the family is also a reason to arrange non-emergency screening.
Every sign above is quoted from the sofidex article on Wilson disease. If you are not sure, err upward — it is always reasonable to be checked.