Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Get emergency help
Call emergency services for:
A seizure lasting five minutes or longer
Repeated seizures without recovery between them
Severe breathing difficulty or sudden chest pain with breathlessness
Sudden severe side or back pain with faintness or weakness
New severe headache with repeated vomiting, confusion, marked sleepiness, or collapse
Follow an existing emergency seizure plan if one has been provided.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Seek prompt medical advice
Ask for prompt assessment after a first suspected seizure, a clear change in seizure pattern, blood in the urine, persistent flank pain, increasing breathlessness, or repeated headaches and vomiting.
Babies with clusters of brief body stiffening, head drops, or sudden repeated jerks need urgent assessment for infantile spasms.
3
Does any of this apply?
Book an appointment
Arrange routine follow-up
The article also says
Contact your usual care team if there are new or gradually changing skin growths, headaches, seizures, behaviour, learning, breathing, urinary, or vision concerns.
Also seek review if medicines are causing side effects or scheduled surveillance has been missed.
Every sign above is quoted from the sofidex article on Tuberous sclerosis. If you are not sure, err upward — it is always reasonable to be checked.