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Warning-sign checks

Systemic mastocytosis: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for possible anaphylaxis, especially if you have:

    • Trouble breathing, wheezing, or throat or tongue swelling
    • Fainting, collapse, confusion, or severe weakness
    • A sudden widespread reaction involving more than one body system
    • Rapidly worsening symptoms after an insect sting, food, or medicine

    Emergency assessment is still needed after its use because symptoms can return.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact your usual care team promptly for new or worsening symptoms such as unexplained weight loss, persistent diarrhea, increasing abdominal swelling, jaundice, unusual bruising, repeated infections, or new severe bone pain.

  3. 3

    Does any of this apply?

    Book an appointment

    Routine follow-up is appropriate for stable flushing, itching, digestive symptoms, or fatigue that are already part of your care plan.

    Mention any change in their pattern, frequency, or effect on daily life at your next review.

The article also says

If you have been prescribed an epinephrine auto-injector, use it as instructed without waiting to see whether the reaction settles.

Every sign above is quoted from the sofidex article on Systemic mastocytosis. If you are not sure, err upward — it is always reasonable to be checked.