Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Seek emergency help for possible shunt blockage or infection.
Warning signs can include severe or worsening headache, repeated vomiting, marked sleepiness, confusion, seizure, new vision problems, or loss of consciousness.
In a baby, signs can include a tense soft spot, rapidly increasing head size, poor feeding, vomiting, or unusual drowsiness.
Emergency assessment is also needed for sudden loss of movement or sensation, severe breathing difficulty, or fluid leaking from an open spinal wound.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Arrange prompt medical review for:
New back pain, leg weakness, numbness, or difficulty walking
A new change in bladder or bowel control
Repeated urinary infections, pain when urinating, or fever
Red, broken, swollen, or draining skin, especially on a numb area
New pressure areas caused by braces, footwear, or seating
Persistent headaches or changes in school, work, balance, or coordination
These symptoms may reflect a treatable problem such as infection, pressure injury, tethered cord, or equipment that needs adjustment.
Every sign above is quoted from the sofidex article on Spina bifida. If you are not sure, err upward — it is always reasonable to be checked.