Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Call emergency services for a first seizure, a seizure lasting five minutes or longer, repeated seizures without recovery, or any seizure with serious injury or breathing difficulty.
Follow the person's emergency seizure plan if it gives a different earlier threshold.
Emergency help is also needed for severe choking, blue or gray lips, marked difficulty breathing, unresponsiveness, or immediate risk of self-harm or harm to someone else.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Report increasing seizures or new medication side effects promptly, even if each seizure stops as expected.
Seek urgent medical advice for:
New coughing or choking during meals
Reduced drinking, dark urine, or other signs of dehydration
Rapid weight loss or repeated vomiting
A sudden increase in confusion, sleepiness, falls, or seizures
Fever, persistent cough, or possible chest infection
New hallucinations, severe distress, or unsafe behavior
3
Does any of this apply?
Book an appointment
Arrange routine follow-up for gradual changes in vision, mobility, learning, sleep, mood, communication, eating, or daily care needs.
Every sign above is quoted from the sofidex article on Spielmeyer-vogt disease. If you are not sure, err upward — it is always reasonable to be checked.