Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Seek emergency care for sudden major vision loss, severe eye pain, rapid swelling around the eye, or an eye that is pushed forward.
A child receiving chemotherapy also needs urgent help for fever or signs of infection, following the emergency instructions provided by their cancer team.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Arrange an urgent medical assessment if you notice:
A repeated white or pale pupil reflection
A newly crossed or turned eye
A persistent red or painful eye without a clear explanation
An eye that looks enlarged, cloudy, or different from the other eye
A baby who stops following faces or objects
These signs often have causes other than retinoblastoma.
They still need prompt examination rather than waiting for a routine sight test.
During follow-up, contact the specialist team promptly about a new white reflection, a new change in eye position, worsening vision, or persistent problems with an implant or artificial eye.
3
Does any of this apply?
Book an appointment
Stable vision needs, routine prosthesis care, and planned screening can usually be discussed at scheduled appointments.
Every sign above is quoted from the sofidex article on Retinoblastoma. If you are not sure, err upward — it is always reasonable to be checked.