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Warning-sign checks

Pulmonary lymphangiomyomatosis: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for:

    • Sudden chest pain with new or rapidly worsening breathlessness
    • Severe difficulty breathing, fainting, confusion, or blue-grey lips
    • Coughing up more than a small streak of blood
    • Sudden severe side or back pain with weakness or dizziness
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    These symptoms may indicate a collapsed lung, serious bleeding, or another urgent problem.

    Seek prompt medical advice for a noticeable but less severe increase in breathlessness, new chest discomfort, blood in the urine, abdominal swelling, or symptoms of infection while taking sirolimus.

  3. 3

    Does any of this apply?

    Book an appointment

    Routine follow-up is appropriate for gradual changes in exercise ability, persistent cough, medicine side effects, contraception questions, pregnancy planning, or travel advice.

    Report changes rather than waiting for the next planned visit if they are affecting daily life.

Every sign above is quoted from the sofidex article on Pulmonary lymphangiomyomatosis. If you are not sure, err upward — it is always reasonable to be checked.