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Warning-sign checks

Polycystic kidney disease: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for a sudden, extremely severe headache, particularly with vomiting, neck stiffness, fainting, confusion, weakness, difficulty speaking, or a seizure.

    These symptoms can occur with bleeding around the brain and need immediate assessment.

    Severe shortness of breath, chest pain, collapse, or stroke-like symptoms also require emergency care.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek a medical review sooner for new or worsening side pain, repeated urinary symptoms, rising home blood pressure readings, increasing swelling, or changes in urination.

    Seek urgent medical assessment for:

    • Fever with side or back pain, which may indicate kidney infection
    • Visible blood in the urine, especially if it persists or contains clots
    • Severe or persistent abdominal, side, or back pain
    • Vomiting that prevents you from keeping fluids down
    • Very little urine or an inability to pass urine
    • New severe headache during pregnancy, especially with vision changes or high blood pressure
  3. 3

    Does any of this apply?

    Book an appointment

    Arrange routine follow-up if you have PKD, even when you have no symptoms.

Every sign above is quoted from the sofidex article on Polycystic kidney disease. If you are not sure, err upward — it is always reasonable to be checked.