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Warning-sign checks

Opthalmoneuromyelitis: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency medical care for:

    • New or rapidly worsening loss of vision
    • New weakness, paralysis, or inability to walk
    • Difficulty breathing, swallowing, or staying awake
    • Severe confusion, collapse, or a seizure
    • Sudden loss of bladder control with weakness or numbness

    If you use a complement-blocking medicine, follow its specific emergency plan for possible meningococcal infection.

    And for anyone, someone who:

    • has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact your neurological team urgently for new eye pain, blurred or faded vision, spreading numbness, increasing muscle weakness, persistent hiccups, or repeated unexplained vomiting.

    An NMOSD attack can start with symptoms that seem mild, and early assessment matters.

    Fever, severe headache, stiff neck, a new rash, or marked illness while taking an immune-suppressing medicine also needs prompt assessment.

    And for anyone, someone who:

    • has a new severe headache unlike any they have had before
  3. 3

    Does any of this apply?

    Book an appointment

    Routine appointments are appropriate for stable fatigue, longstanding pain, rehabilitation needs, medication monitoring, or questions about work, travel, vaccines, and pregnancy planning.

Every sign above is quoted from the sofidex article on Opthalmoneuromyelitis. If you are not sure, err upward — it is always reasonable to be checked.