Micropolygyria with muscular dystrophy: when to get help
Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Call emergency services for:
Severe difficulty breathing, blue or grey lips, or inability to speak or respond
A seizure lasting five minutes or longer, unless the emergency plan says otherwise
Repeated seizures without recovery between them
Sudden unresponsiveness or a major, unexpected loss of movement
Choking that does not clear or signs of a blocked airway
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Seek urgent medical advice for a new seizure, a clear change in a known seizure pattern, increasing sleepiness, possible dehydration, or worsening breathing symptoms.
Follow any personal seizure or respiratory care plan already provided.
3
Does any of this apply?
Book an appointment
Arrange routine follow-up if there is a gradual change in strength, mobility, posture, sleep, eating, communication, or seizure frequency.
Coughing during meals, slow weight gain, morning headaches, weak coughing, or repeated chest infections should also be assessed.
Every sign above is quoted from the sofidex article on Micropolygyria with muscular dystrophy. If you are not sure, err upward — it is always reasonable to be checked.