Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Seek emergency care for sudden loss or major blurring of vision, a visibly deformed limb, or severe pain with an inability to stand or use the affected limb after an injury.
These symptoms may indicate pressure on the optic nerve or a fracture.
If you have known adrenal insufficiency following treatment for cortisol excess, follow your emergency plan for vomiting, severe weakness, confusion, collapse, or inability to take prescribed steroid medicine.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Seek prompt medical assessment for:
Sudden or rapidly worsening bone pain
New swelling over an affected bone
A new hearing change, severe headache, or facial numbness
Persistent fast heartbeat, shaking, sweating, or unexplained weight loss
New weakness or worsening difficulty walking
Vaginal bleeding or breast development in a young child
3
Does any of this apply?
Book an appointment
Arrange routine follow-up as recommended by your specialist team, even if symptoms are stable.
Make a non-urgent appointment if you notice increasing bone pain, a new limp, gradual facial change, altered periods, signs of early puberty, or symptoms of thyroid or growth hormone excess.
Every sign above is quoted from the sofidex article on Mccune-albright syndrome. If you are not sure, err upward — it is always reasonable to be checked.