Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Seek emergency medical care for:
Sudden chest pain with new or rapidly worsening breathlessness
Severe difficulty breathing, blue or grey lips, fainting, or confusion
Sudden severe side or back pain with weakness, dizziness, or collapse
Coughing up more than a small streak of blood
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
These symptoms may indicate a collapsed lung, serious bleeding from a kidney angiomyolipoma, or another urgent problem.
Arrange prompt medical advice for a noticeable, persistent increase in breathlessness, new chest discomfort, swelling of the abdomen or legs, blood in the urine, or possible infection while taking sirolimus.
3
Does any of this apply?
Book an appointment
Routine follow-up is appropriate when symptoms are stable.
Keep planned appointments for lung-function testing, medicine monitoring, oxygen assessment, and kidney imaging.
Report gradual changes rather than waiting for the next visit if they begin to affect everyday activities.
Every sign above is quoted from the sofidex article on Lymphangioleimyomatosis. If you are not sure, err upward — it is always reasonable to be checked.