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Warning-sign checks

LGMD: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    These may need assessment but are not always emergencies.

    Call emergency services for:

    • Severe or rapidly worsening difficulty breathing
    • Blue or grey lips, confusion, or inability to speak because of breathlessness
    • Choking with inability to breathe
    • Chest pain, fainting, or a sustained rapid or irregular heartbeat

    These symptoms can have causes other than LGMD, but they need immediate assessment.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    If you already have LGMD, contact your care team promptly about increasing falls, new swallowing difficulty, a weaker cough, morning headaches, daytime sleepiness, or shortness of breath when lying down.

    Seek urgent medical help for dark urine with severe muscle pain or weakness, especially after strenuous activity or illness.

    This can be a sign of substantial muscle breakdown.

  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine appointment if you notice gradual difficulty climbing stairs, rising from chairs, lifting your arms, or keeping up with usual activities.

    These symptoms have many possible causes and do not necessarily mean LGMD.

Every sign above is quoted from the sofidex article on LGMD. If you are not sure, err upward — it is always reasonable to be checked.