Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
This is urgent follow-up rather than usually an emergency visit.
Call emergency services for:
A seizure lasting several minutes or repeated seizures without recovery
Sudden weakness, facial drooping, loss of balance, or reduced responsiveness
Sudden loss of vision or a major sudden change in sight
Breathing difficulty, blue or grey colouring, or difficulty waking
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Arrange prompt medical assessment if a newborn develops unexplained linear blisters or a swirling rash.
Newborn rashes have several possible causes, including infections that may need rapid treatment.
A new diagnosis or strong suspicion of IP should lead to prompt specialist eye assessment, even when the baby appears to see normally.
Seek same-day medical advice for:
Increasing skin pain, warmth, swelling, pus, or spreading redness
Fever or poor feeding with a blistering rash
New staring spells, unusual movements, or possible brief seizures
A new squint, abnormal eye movement, or concern about visual attention
3
Does any of this apply?
Book an appointment
Routine concerns such as fading pigmentation, tooth shape, nail changes, school support, or family-planning questions can usually be discussed at a scheduled appointment.
Every sign above is quoted from the sofidex article on Incontinentia pigmenti. If you are not sure, err upward — it is always reasonable to be checked.