Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Call emergency services for severe breathing difficulty, collapse, chest pain with sweating or breathlessness, signs of stroke, or blue-grey lips, tongue or skin.
Stroke signs can include sudden facial drooping, arm weakness, speech difficulty, vision loss or loss of balance.
And for anyone, someone who:
has chest pain, tightness or pressure lasting more than a few minutes
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
If you already have a diagnosed defect, contact your heart team sooner than planned if symptoms are new or becoming more noticeable.
Seek urgent medical care for:
Sudden or marked worsening of breathing
New fainting or severe weakness
A sustained racing or irregular heartbeat with dizziness
New swelling with breathlessness
Fever with unexplained illness in someone at increased endocarditis risk
And for anyone, someone who:
is getting rapidly more short of breath, or has gained several pounds in a few days with swelling
3
Does any of this apply?
Book an appointment
Arrange a routine medical appointment if you or your child has ongoing breathlessness, tiring during feeds or activity, poor weight gain, repeated faint feelings, swelling, or episodes of a fast or irregular heartbeat.
These symptoms need assessment but do not necessarily mean there is a heart defect.
Routine follow-up remains important even when there are no symptoms.
Every sign above is quoted from the sofidex article on Hole in the heart. If you are not sure, err upward — it is always reasonable to be checked.