Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Call emergency services for:
Severe or sudden breathlessness
Chest pain that does not settle
Fainting with ongoing weakness, confusion, or palpitations
Signs of a stroke, such as facial drooping, arm weakness, or speech difficulty
Collapse, unresponsiveness, or severe difficulty breathing
These symptoms can have causes other than amyloidosis, but they need immediate assessment.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Contact your care team sooner if you develop increasing numbness, weakness, swelling, breathlessness, palpitations, weight loss, or repeated dizziness.
Seek urgent medical advice for a sudden decline in walking, repeated fainting, rapidly worsening swelling, persistent vomiting or diarrhoea, inability to keep fluids down, or a wound on a numb foot that looks infected.
And for anyone, someone who:
has a wound that is hot, spreading red, or leaking pus
3
Does any of this apply?
Book an appointment
Arrange routine follow-up if you have hereditary amyloidosis or a known family gene change, even if your symptoms appear stable.
Every sign above is quoted from the sofidex article on Hereditary amyloidosis. If you are not sure, err upward — it is always reasonable to be checked.