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Warning-sign checks

Hemophilia A: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency care after a significant head injury, even if you initially feel well.

    Also get emergency help for:

    • A severe or worsening headache, repeated vomiting or confusion
    • Unusual sleepiness, weakness, a seizure or loss of consciousness
    • Bleeding in the neck or throat, trouble breathing or trouble swallowing
    • Severe abdominal, back or groin pain
    • Bleeding that remains heavy or does not respond to your emergency plan
    • A painful, swollen muscle with numbness, weakness or a cold limb
    • A major injury or suspected internal bleeding

    Use your prescribed emergency treatment if your hemophilia plan tells you to, but do not delay emergency assessment.

    Tell the emergency team that you have hemophilia A, what treatment you use and whether you have an inhibitor.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact your hemophilia team promptly for a suspected joint or muscle bleed, repeated nosebleeds, blood in urine or stool, or bleeding that keeps returning.

  3. 3

    Does any of this apply?

    Book an appointment

    Routine follow-up is appropriate for reviewing preventive treatment, new bruising patterns, ongoing joint discomfort, menstrual bleeding, dental planning or an upcoming procedure.

    Arrange the procedure with the hemophilia team in advance rather than waiting until the day.

Every sign above is quoted from the sofidex article on Hemophilia A. If you are not sure, err upward — it is always reasonable to be checked.