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Warning-sign checks

Gilbert syndrome: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency care for severe abdominal pain, confusion, fainting, difficulty waking, vomiting that prevents you keeping fluids down, or jaundice with rapidly worsening illness.

    These are not typical features of Gilbert syndrome and may have another cause.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Arrange a prompt medical assessment if you develop jaundice for the first time.

    Jaundice has many causes, and a clinician needs to confirm that the pattern fits Gilbert syndrome.

    Seek prompt medical advice if yellowing occurs with:

    • Dark urine or very pale stools
    • Widespread itching
    • New or persistent abdominal pain
    • Fever or feeling significantly unwell
    • Repeated vomiting
    • Jaundice that is deeper or more persistent than your usual pattern
    • Symptoms starting after a new medicine
  3. 3

    Does any of this apply?

    Book an appointment

    If you already have a diagnosis, make a routine appointment if episodes become more frequent, last longer than usual or are accompanied by unexplained tiredness, abdominal symptoms or weight change.

Every sign above is quoted from the sofidex article on Gilbert syndrome. If you are not sure, err upward — it is always reasonable to be checked.