sofidexFor patientsAre you a clinician? Clinical site
Ask Sofi
Listen
Patient SupportEmergencies & Reporting
Log inSign up

Warning-sign checks

Ganglioneuroma: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for severe breathing difficulty, fainting, sudden paralysis, or chest pain with a pounding heartbeat, heavy sweating, or a severe headache.

    These unusual events need immediate assessment.

    And for anyone, someone who:

    • has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek urgent medical assessment for new or rapidly worsening weakness, numbness, difficulty walking, or loss of bladder or bowel control.

    These may indicate pressure on the spinal cord or major nerves.

    And for anyone, someone who:

    • has a new severe headache unlike any they have had before
  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine medical appointment for a persistent lump, unexplained localized pain, ongoing cough, repeated sweating and palpitations, frequent watery diarrhea, or blood pressure readings that remain higher than expected.

    These symptoms are not specific to ganglioneuroma but deserve assessment.

    If you are being monitored for a known ganglioneuroma, contact your care team before the next planned visit if symptoms are new, worsening, or different from usual.

    Attend routine follow-up even when you feel well because scans may detect change before symptoms develop.

Every sign above is quoted from the sofidex article on Ganglioneuroma. If you are not sure, err upward — it is always reasonable to be checked.