sofidexFor patientsAre you a clinician? Clinical site

Warning-sign checks

Down syndrome: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Get emergency help for:

    • Severe trouble breathing, blue or grey lips, or inability to wake normally
    • Fainting with ongoing symptoms or severe chest discomfort
    • Sudden weakness, loss of movement, or loss of bladder or bowel control
    • A seizure lasting several minutes or repeated seizures without recovery
    • Signs of severe dehydration, such as very little urine with marked drowsiness
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek prompt medical advice for new neck pain, weakness, numbness, reduced coordination, or a change in walking, particularly after a fall, collision, or other neck injury.

  3. 3

    Does any of this apply?

    Book an appointment

    Arrange routine follow-up for recommended health monitoring.

    Make a non-urgent appointment for reduced hearing or vision, persistent constipation, unusual tiredness, weight changes, loud snoring, pauses in breathing during sleep, loss of learned skills, or continuing mood or behaviour changes.

    These are not routine features of Down syndrome and need assessment based on their cause.

Every sign above is quoted from the sofidex article on Down syndrome. If you are not sure, err upward — it is always reasonable to be checked.