Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Call emergency services if there is:
Difficulty breathing, noisy breathing, or rapidly worsening throat swelling
Severe weakness, confusion, fainting, or unusual difficulty waking
Heavy bleeding that does not stop with gentle pressure
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Seek urgent medical assessment for a baby or child who cannot drink, is repeatedly vomiting, has far fewer wet nappies than usual, or shows other signs of dehydration.
Prompt assessment is also needed for fever with rapidly spreading redness, severe swelling, worsening pain, pus, or marked illness.
These may indicate a spreading infection.
3
Does any of this apply?
Book an appointment
Routine appointments can cover dressings, footwear, nutrition, school or work adaptations, genetic counselling, and long-term symptom control.
The article also says
Contact the EB or dermatology team soon if wounds are not healing as expected, mouth blisters limit food or fluids, pain is becoming harder to control, or thickened skin affects walking or hand use.
Every sign above is quoted from the sofidex article on Dowling-meara syndrome. If you are not sure, err upward — it is always reasonable to be checked.