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Warning-sign checks

Degenerative chorea: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency help if involuntary movement begins suddenly, especially with facial drooping, one-sided weakness, severe headache, loss of speech, confusion, or loss of consciousness.

    These may indicate stroke or another acute brain problem.

    Emergency help is also appropriate for severe breathing difficulty, ongoing choking, a serious injury, or an immediate risk of self-harm.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact your care team promptly if you have:

    • New choking, coughing during meals, or unplanned weight loss
    • More frequent falls or difficulty managing safely at home
    • A major change in mood, behaviour, confusion, or sleep
    • Side effects after starting or changing a medicine
    • Symptoms worsening much faster than expected

    Suicidal thoughts deserve urgent support even if they have occurred before.

  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine medical assessment for unexplained involuntary movements, increasing clumsiness, repeated falls, or gradual changes in speech, mood, behaviour, or thinking.

    Early assessment may identify a treatable cause and provides a starting point for monitoring.

Every sign above is quoted from the sofidex article on Degenerative chorea. If you are not sure, err upward — it is always reasonable to be checked.