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Warning-sign checks

Deep brain stimulation: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency help for sudden weakness, facial drooping, trouble speaking, loss of consciousness, severe breathing difficulty, or a seizure lasting more than five minutes.

    Also seek emergency help for repeated seizures without recovery between them.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact the surgical team urgently for a worsening severe headache, repeated vomiting, new confusion, fever, increasing redness or swelling, drainage from an incision, an opening wound, or visible hardware.

  3. 3

    Does any of this apply?

    Book an appointment

    Mild stimulation effects that are not rapidly worsening can usually be discussed during office hours.

    Contact the programming team rather than changing settings unless you have been specifically taught how to use your patient controller.

Every sign above is quoted from the sofidex article on Deep brain stimulation. If you are not sure, err upward — it is always reasonable to be checked.