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Warning-sign checks

Craniosynostosis repair: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for trouble breathing, a seizure, severe bleeding, loss of consciousness, or if your child is very difficult to wake.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact the surgical team urgently if your child has:

    • Fever or chills, using the team’s temperature threshold
    • Increasing redness, warmth, swelling, pain, or drainage at the incision
    • Clear watery fluid leaking from the wound or nose
    • Repeated vomiting or difficulty keeping fluids down
    • Swelling that suddenly worsens after starting to improve
    • New unusual sleepiness, irritability, weakness, or vision changes
    • Helmet pressure sores, blisters, or skin breakdown
  3. 3

    Does any of this apply?

    Book an appointment

    Use the routine contact number for questions about helmet fit, scar care, activity, appointments, or slowly improving symptoms.

The article also says

Some swelling, bruising, tiredness, and mild discomfort are expected.

Every sign above is quoted from the sofidex article on Craniosynostosis repair. If you are not sure, err upward — it is always reasonable to be checked.