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Warning-sign checks

Congenital heart disease: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    These symptoms deserve assessment but are not always an emergency.

    Call emergency services for:

    • Severe difficulty breathing
    • Sudden or marked blue-grey colour of the lips or tongue
    • Collapse, unresponsiveness, or a seizure
    • Chest pain with collapse, sweating, or severe breathlessness
    • A baby who is struggling to breathe and cannot feed or remain awake

    If someone is unresponsive and not breathing normally, call emergency services and begin cardiopulmonary resuscitation if you are able.

    And for anyone, someone who:

    • has chest pain, tightness or pressure lasting more than a few minutes
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact the congenital heart team promptly if established symptoms become more frequent, medicines are difficult to take, or there is a change in colour, feeding, growth, or activity.

    Follow any condition-specific plan already provided.

    Seek urgent medical assessment for fainting during exercise, a sustained fast or irregular heartbeat, new chest pain, rapidly increasing swelling, or clearly worsening breathlessness.

    And for anyone, someone who:

    • is getting rapidly more short of breath, or has gained several pounds in a few days with swelling
  3. 3

    Does any of this apply?

    Book an appointment

    Arrange routine medical advice if you or your child develops a gradual change such as reduced exercise ability, new palpitations, slow weight gain, increasing tiredness, mild swelling, or breathlessness that is not severe.

Every sign above is quoted from the sofidex article on Congenital heart disease. If you are not sure, err upward — it is always reasonable to be checked.