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Warning-sign checks

Colitis gravis: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Severe pain, abdominal swelling, fainting, heavy bleeding, confusion, chest pain, or breathing difficulty requires urgent or emergency assessment.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact the care team sooner than planned if bleeding or diarrhea returns, bowel movements become more frequent, fever develops, food or fluids are difficult to tolerate, or treatment side effects occur.

  3. 3

    Does any of this apply?

    Book an appointment

    After a severe episode, follow-up should confirm that symptoms and inflammation are improving.

    The care plan may include blood tests, stool markers, medication monitoring, and later endoscopy.

    The timing depends on the cause, treatment response, and overall health.

    Routine follow-up may address vaccination, nutrition, anemia, bone health, medication side effects, mental well-being, and colorectal cancer surveillance.

    People taking medicines that affect the immune system may need infection screening and periodic blood tests.

The article also says

For ulcerative colitis, feeling better does not always mean that inflammation has fully settled.

Ongoing maintenance treatment is often needed to reduce the chance of another flare.

Do not stop corticosteroids suddenly or change immune-targeting medicine without guidance from the prescribing clinician.

Every sign above is quoted from the sofidex article on Colitis gravis. If you are not sure, err upward — it is always reasonable to be checked.