Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
Seek emergency care for severe difficulty breathing, blue or gray lips, confusion, fainting, inability to wake normally, signs of shock, or rapidly worsening illness.
Contact the CGD care team promptly for fever or a new sign of infection.
The team should provide a personal fever threshold and instructions.
New cough, chest pain, shortness of breath, painful swelling, an abscess, persistent vomiting, worsening diarrhea, blood in the stool, or trouble urinating also needs timely medical advice.
Regular follow-up is important even when a person feels well.
Visits may include a review of infections, bowel or urinary symptoms, medication use, environmental exposures, growth in children, and emotional well-being.
These are different from stable concerns that can be discussed at a scheduled follow-up visit.
And for anyone, someone who:
The article also says
Blood tests may be used to monitor blood-cell counts and liver or kidney function.
Some medicines need additional monitoring.
The care team should know about all prescription drugs, nonprescription products, and supplements because interactions can change antimicrobial levels or side effects.
A written illness plan can explain whom to call, where to seek care, and which tests may be needed.
Tell any clinician evaluating an illness that CGD is present, even if the symptoms initially appear mild.
Every sign above is quoted from the sofidex article on Chronic granulomatous disease. If you are not sure, err upward — it is always reasonable to be checked.