Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
Sudden major vision loss, severe eye pain, or vision changes accompanied by signs of a possible stroke require emergency care.
Contact the eye clinic promptly for a noticeable new change in vision.
Seek urgent same-day assessment for flashes, many new floaters, a curtain-like shadow, or sudden visual distortion.
Follow-up is usually long term.
The schedule depends on the diagnosis, rate of change, symptoms, and whether complications are present.
Routine visits may include a dilated examination, OCT, retinal imaging, and visual-field testing.
Repeating the same tests over time helps the clinician judge whether the condition is stable or progressing.
The article also says
Genetic results may need to be reviewed again as scientific knowledge changes.
A previously uncertain result may later be reclassified.
People interested in research may also ask whether a clinical-trial registry or inherited-retinal-disease center is appropriate.
Family members should not assume that they are affected or unaffected based only on symptoms.
When a disease-causing gene change is confirmed, a genetic counselor can explain who may wish to consider targeted testing.
Every sign above is quoted from the sofidex article on Choroidal dystrophies. If you are not sure, err upward — it is always reasonable to be checked.