sofidexFor patientsAre you a clinician? Clinical site

Warning-sign checks

Cholesteatoma: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Emergency care is appropriate for sudden neurologic symptoms, collapse, or severe facial drooping.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact the surgical team promptly if pain or drainage is increasing, hearing suddenly worsens, the wound becomes red or swollen, or fever develops.

    Seek urgent medical care for new facial weakness, severe or continuous vertigo, swelling behind the ear, intense headache, confusion, neck stiffness, or repeated vomiting.

  3. 3

    Does any of this apply?

    Book an appointment

    Cholesteatoma requires long-term follow-up, including after apparently successful surgery.

    Small areas of tissue may remain in places that are difficult to see, and a new retraction pocket or cholesteatoma can develop later.

    Routine follow-up may include ear examinations, microscope cleaning, hearing tests, and diffusion-weighted MRI.

    The timing depends on the operation, the extent of disease, age, symptoms, and what the surgeon finds during follow-up.

    Keeping follow-up appointments is important even when the ear feels normal.

    Recurrent or residual cholesteatoma may not cause noticeable symptoms at first.

The article also says

People with a canal wall down cavity may need periodic professional cleaning because the enlarged ear space may not clear wax and skin normally.

The clinician can also advise whether water precautions or other ongoing ear care are needed.

After surgery, the care team should explain which symptoms are expected and when to make contact.

Mild discomfort, temporary fullness, and some drainage may occur during healing.

Every sign above is quoted from the sofidex article on Cholesteatoma. If you are not sure, err upward — it is always reasonable to be checked.