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Warning-sign checks

Agammaglobulinemia: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek urgent or emergency care for difficulty breathing, blue or gray lips, severe dehydration, confusion, a seizure, a stiff neck with severe illness, fainting, or rapidly worsening symptoms.

    An emergency medical identification card or phone record can help inform clinicians about the immune disorder and current treatment.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact the medical team promptly for fever, worsening cough, ear pain, persistent diarrhea, an infected wound, or other signs of infection.

    Early assessment is especially important if symptoms are not improving as expected.

  3. 3

    Does any of this apply?

    Book an appointment

    Routine follow-up with an immunologist is needed even when infections are well controlled.

    Visits may review infusion tolerance, IgG levels, antibiotic use, missed school or work, growth in children, and any new breathing, hearing, joint, or digestive symptoms.

    A persistent wet cough, falling exercise tolerance, or repeated pneumonia should be reported rather than saved for the next routine visit.

The article also says

People with a history of lung infections may need periodic lung function testing or imaging.

Every sign above is quoted from the sofidex article on Agammaglobulinemia. If you are not sure, err upward — it is always reasonable to be checked.